We are posting some of the tools and caculators we use on a daily basis in order to facilitate with the management of our son’s diet. We are willing to share these tools, please reach out using the email provided on the Contact Us page.
We used to give him Tolerex (up until he was a bit over 2 years old, where we started to give him Glycosade “modified cornstarsh”) for overnight continuous feeds using the zevex enteralite infinity pump; as our son grew, he needed to be given increased volumes throughout the night; instead of mixing a full bag of Tolerex and refrigerating it, we decided to have the right portions prepared and mix it right before we give it to Aidan since we need to top Tolerex every 4 hours (Tolerex should be given within a 4 hours time span when at room temperature).